Physical and psychological well-being of caregivers of children with cerebral palsy at Hearts, Hands, and Voice Foundation, Winneba

This qualitative study examined the physical and psychological well-being of caregivers of
children with cerebral palsy at the Hearts, Hands, and Voice Foundation, Winneba. The
study employed a descriptive case study design. Twenty (20) caregivers of children with
cerebral palsy, ranging in age from 20 to 69 years old who frequently visit the care center
were purposefully sampled. Through semi-structured interviews, caregivers shared their
personal experiences, concerns, and perspectives on their well-being. Thematic analysis
revealed key themes in physical health status and psychological well-being. Caregivers
reported frequent physical strain, chronic pain, fatigue, and limitations in daily activities.
Emotionally, they expressed feelings of stress, anxiety, and isolation. Many caregivers
highlighted concerns about accessing adequate healthcare and specialized services for their
children, often relying on foundations and support organizations for assistance. Support
networks, such as the Hearts, Hands, and Voice Foundation, the Ghana Federation of
Disabilities, and local community groups, were crucial in providing information, training, and
social support. These resources helped caregivers gain knowledge, connect with others in
similar situations, and receive necessary assistance. The findings underscore the significant
impact of caregiving on both physical and psychological well-being and highlight the need
for increased support and comprehensive healthcare services for caregivers.
Recommendations from this study inform the development of interventions to improve the
well-being of caregivers of children with cerebral palsy